The October Slide: Why Chronic Illness Symptoms Flare When the Seasons Change
The October Slide is the informal name that many of us in the chronic illness community call the worsening of symptoms as…
Our members share the childhood signs of hEDS and HSD they didn’t know were signs
The early signs of hEDS (hypermobile Ehlers-Danlos syndrome) and HSD (hypermobility spectrum disorder) often show up in childhood as joint instability, unexplained…
ME/CFS and hEDS/HSD: the overlap, and what it’s actually like to live with both
If you live with both hypermobile Ehlers-Danlos syndrome (hEDS) or hypermobility spectrum disorder (HSD) and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), you’re not…
Living with Myopathic Ehlers-Danlos Syndrome: Finding Community Beyond a Diagnosis
Myopathic EDS (mEDS) is an ultra-rare EDS subtype, caused by variants in the COL12A1 gene, that combines muscle weakness with joint hypermobility…
Does Movement Therapy Work for EDS and Hypermobility? 3 Real Member Stories
Many people with hypermobile Ehlers-Danlos syndrome (hEDS) or hypermobility spectrum disorder (HSD) arrive at movement therapy after years of trying everything possible…