Community Voices August 12, 2026
Our members share the childhood signs of hEDS and HSD they didn’t know were signs
The early signs of hEDS (hypermobile Ehlers-Danlos syndrome) and HSD (hypermobility spectrum disorder) often show up in childhood as joint instability, unexplained…
Community Voices August 11, 2026
ME/CFS and hEDS/HSD: the overlap, and what it’s actually like to live with both
If you live with both hypermobile Ehlers-Danlos syndrome (hEDS) or hypermobility spectrum disorder (HSD) and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), you’re not…
Community Voices July 27, 2026
Living with Myopathic Ehlers-Danlos Syndrome: Finding Community Beyond a Diagnosis
Myopathic EDS (mEDS) is an ultra-rare EDS subtype, caused by variants in the COL12A1 gene, that combines muscle weakness with joint hypermobility…
Community Voices July 6, 2026
Does Movement Therapy Work for EDS and Hypermobility? 3 Real Member Stories
Many people with hypermobile Ehlers-Danlos syndrome (hEDS) or hypermobility spectrum disorder (HSD) arrive at movement therapy after years of trying everything possible…