Our members share the childhood signs of hEDS and HSD they didn’t know were signs
The early signs of hEDS (hypermobile Ehlers-Danlos syndrome) and HSD (hypermobility spectrum disorder) often show up in childhood as joint instability, unexplained bruising, chronic fatigue, and pain dismissed as growing…
The Hypermobility and ADHD Connection: What It Means for Movement, Sensory Overload & Pacing
51% of neurodivergent people have joint hypermobility, and nearly 4 in 10 autistic people meet criteria for Ehlers-Danlos Syndrome or Hypermobility Spectrum…
Why Am I in So Much Pain with hEDS/HSD? Now We Can Actually See Why
If you live with hypermobile Ehlers-Danlos syndrome (hEDS) or hypermobility spectrum disorder (HSD), your pain and instability involve several things happening together.…
ME/CFS and hEDS/HSD: the overlap, and what it’s actually like to live with both
If you live with both hypermobile Ehlers-Danlos syndrome (hEDS) or hypermobility spectrum disorder (HSD) and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), you’re not…
Living with Myopathic Ehlers-Danlos Syndrome: Finding Community Beyond a Diagnosis
Myopathic EDS (mEDS) is an ultra-rare EDS subtype, caused by variants in the COL12A1 gene, that combines muscle weakness with joint hypermobility…
What’s the Best Exercise for Hypermobility, hEDS, or HSD?
There isn’t one best exercise for hypermobility, hEDS, or HSD. Looking for that one best option can actually hold people back, and…
You Don’t Have to Earn Rest: What Hypermobility and hEDS Taught Me About Listening Earlier
Many of us with hypermobility and EDS have asked ourselves some version of this question: Am I bad enough today to justify…