Why Am I in So Much Pain with hEDS/HSD? Now We Can Actually See Why
If you live with hypermobile Ehlers-Danlos syndrome (hEDS) or hypermobility spectrum disorder (HSD), your pain and instability involve several things happening together. Among those are visible changes in your fascia,…
ME/CFS and hEDS/HSD: the overlap, and what it’s actually like to live with both
If you live with both hypermobile Ehlers-Danlos syndrome (hEDS) or hypermobility spectrum disorder (HSD) and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), you’re not…
Living with Myopathic Ehlers-Danlos Syndrome: Finding Community Beyond a Diagnosis
Myopathic EDS (mEDS) is an ultra-rare EDS subtype, caused by variants in the COL12A1 gene, that combines muscle weakness with joint hypermobility…
What’s the Best Exercise for Hypermobility, hEDS, or HSD?
There isn’t one best exercise for hypermobility, hEDS, or HSD. Looking for that one best option can actually hold people back, and…
You Don’t Have to Earn Rest: What Hypermobility and hEDS Taught Me About Listening Earlier
Many of us with hypermobility and EDS have asked ourselves some version of this question: Am I bad enough today to justify…
Working WITH a Flare-Up: A Gentler Way to Respond to Pain, Tension, or a Subluxation in Hypermobility, hEDS, and HSD
When a musculoskeletal flare hits, whether it’s a pulled muscle, a subluxation, or a sudden spike of tension, there are usually two…
Does Movement Therapy Work for EDS and Hypermobility? 3 Real Member Stories
Many people with hypermobile Ehlers-Danlos syndrome (hEDS) or hypermobility spectrum disorder (HSD) arrive at movement therapy after years of trying everything possible…